Main area of study | Spin-off study name | Year started |
---|---|---|
Autism | Autism (SCQ) | 2001 |
DOH | 2003 | |
DAWBA | 2005 | |
SRS (SRS, SRS-2 and SRS-3) | 2008 (phase 1), 2013 (phase 2), 2017 (phase 3) | |
Autism Speaks (GEMS) | 2009 | |
Hyperactivity, ADHD | SAIL | 2003 |
PHAD | 2003 | |
EEG (NEAAT) | 2009 | |
IDEAS | 2015 | |
Anxiety | Anxiety | 2000 |
ECHO | 2002 | |
FLARe | 2019 | |
Psychopathy traits | MRI Conduct | 2005 |
Language development | OSCCI | 2000 (phase 1) and 2003 (phase 2) |
Stories (TEDS study, age 9) | 2002 | |
SLQ (TEDS study, age 14) | 2008 | |
Language telephone tests (TEDS study, age 14) | 2008 | |
SLI | 2011 | |
SLA | 2012 | |
Cognitive abilities | In-home tests (TEDS study, age 4) | 1998 |
LINCS | 2005 | |
MRI Maths | 2005 | |
Perception (TEDS study, age 19) | 2013 | |
Spatial (Three consecutive TEDS studies, age 19-20: Bricks, Kings Challenge, Navigation) | 2015 | |
Eating, diet, lifestyle, health | Eating Study (Eating-1 and Eating-2) | 1998 (phase 1) and 2005 (phase 2) |
Eating Questionnaire | 2005 | |
Weight Discordance (Eating-3) | 2006 | |
Stuttering | 2006 | |
Twitter (Social Media) | 2013 | |
Myopia | 2012 | |
Music Quotient | 2013 | |
Fashion, Food and Music Preferences (FFMP, TEDS study, age 19) | 2015 | |
Gene expression | RNA | 2007 |
Biomarkers | 2010 | |
MZ discordance in achievement | Diary | 2005 |
Nuffield | 2012 | |
Siblings | Young Sibs | 1997 |
Environmental risk | E-Risk | 1998 |
Adolescent-parent attachment | Attachment | 2010 |
Wellbeing | Wellbeing | 2011 |
Daily Mood | 2014 | |
Engagement in TEDS | Engagement | 2014 |
Being a twin | TAMBA | 2010 |
Anxiety
Study names: | Anxiety, Emotions and Development Study |
Principal investigator: | Patrick Bolton |
Location: | IOP (KCL) |
Focus of study: | Anxiety traits |
Year(s) of study: | 2000 to 2002 |
Number of TEDS families: | 1169 |
TEDS cohorts: | 1994 and 1995 |
Families excluded from sample: |
|
Selection criteria: | Selection was based on a number of anxiety measures in the TEDS 4 year dataset. There were several sample groups, possibly including controls. |
Data collection: | Parent-completed booklets administered by post, followed up with telephone interviews. |
Data available in TEDS: | No |
Documents: | - |
Attachment
Study names: | Attachment Study |
Principal investigator: | Pasco Fearon |
Location: | SGDP Centre, IOP (KCL) and Anna Freud Centre,
London (study staff operation from both locations) |
Focus of study: | Adolescent-parent attachment |
Year(s) of study: | 2010 to 2012 |
Number of TEDS families: | 1265 |
TEDS cohorts: | School cohorts 3 and 4 (twins born between September 1995 and December 1996) |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Parent and twin booklets sent by post. In-person visits, either to the SGDP Centre or to the Anna Freud Centre or to the families' homes, for twin attachment interviews (with videos). |
Data available in TEDS: | No |
Documents: | - |
Autism
Study names: | Autism Study, SCQ study |
Principal investigator: | Francesca Happe and Greg Wallace |
Location: | IOP (KCL) |
Focus of study: | Autistic traits |
Year(s) of study: | 2001 |
Number of TEDS families: | 352 (72 cases, 280 controls) |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Parents questionnaire (SCQ) administered by post or by phone |
Data available in TEDS: | No |
Documents: | - |
Autism Speaks
Study names: | Autism Speaks, GEMS |
Principal investigator: | Angelica Ronald |
Location: | Administered by TEDS |
Focus of study: | Autistic traits |
Year(s) of study: | 2009 |
Number of TEDS families: | 298 (41 cases, 257 controls) |
TEDS cohorts: | All |
Families excluded from sample: |
All groups:
|
Selection criteria: |
|
Data collection: | Families visited the SGDP Centre to give samples of blood and saliva (for DNA and RNA) |
Data available in TEDS: | No |
Documents: | - |
Biomarkers
Study names: | Biomarkers pilot |
Principal investigator: | Andrea Danese |
Location: | Administered by TEDS |
Focus of study: | Gene expression |
Year(s) of study: | 2010 to 2011 |
Number of TEDS families: | 798 |
TEDS cohorts: | School cohort 2 (twins born between September 1994 and August 1995) |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | After an initial mailing of an information pack with consent form,
families were contacted by phone to establish verbal consent and for health
screening. |
Data available in TEDS: | Yes (questionnaires only). The twin questionnaire data were entered in TEDS, and are available in a double entered dataset for roughly 230 twin pairs. The biological data derived from saliva samples have not been retained in TEDS. |
Documents: |
Information sheet
and twin
questionnaire
sent with the initial pack. Annotated twin questionnaire showing dataset variable coding. |
Daily Mood
Study names: | Daily Mood |
Principal investigator: | Yao Zheng (supervised by Robert Plomin) |
Location: | Administered by TEDS |
Focus of study: | Wellbeing/mood |
Year(s) of study: | 2014 |
Number of TEDS families: | 610 |
TEDS cohorts: | School cohort 4 (twins born between September and December 1996) |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | On line and verbal consents were collected from the parents of the
selected families. |
Data available in TEDS: | Yes. The electronic web data were collected on the TEDS web server, and are available in a double entered dataset of 275 twin pairs. Yao Zheng should be included as co-author in any collaborative project. |
Documents: |
Information sheet as linked to the twin web consent page. Annotated twin web questionnaire showing dataset variable coding. |
DAWBA
Study names: | DAWBA (Development and Well Being Assessment), Social Skills and Relationships |
Principal investigator: | Francesca Happe |
Location: | Administered by TEDS |
Focus of study: | Autism |
Year(s) of study: | 2005 to 2007 |
Number of TEDS families: | 433 |
TEDS cohorts: | All |
Families excluded from sample: | Withdrawn families |
Selection criteria: |
|
Data collection: | Parent telephone interviews conducted using the DAWBA instrument |
Data available in TEDS: | No |
Documents: | Information sheet sent with the initial postal invitation. |
Diary
Study names: | Diary Study |
Principal investigator: | Kathryn Asbury |
Location: | Administered by TEDS |
Focus of study: | School environments and achievement |
Year(s) of study: | 2005 |
Number of TEDS families: | 145 (25 in feasibility study, 120 in pilot study) |
TEDS cohorts: | School cohort 2 (twins born between Sep-94 and Aug-95) |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Twin telephone interviews daily over a period of two weeks (10 consecutive school days) |
Data available in TEDS: | No |
Documents: |
Script
showing the questions asked in twin interviews each day. Annotated script showing dataset variable coding. |
DOH
Study names: | DOH (Department of Health) Study, Thinking and Feeling study |
Principal investigator: | Essi Viding |
Location: | Administered by TEDS |
Focus of study: | Theory of Mind, in relation to verbal ability and ASD traits, with cases selected on psychopathic traits. |
Year(s) of study: | 2003 to 2004 |
Number of TEDS families: | 1645 (769 cases, 876 controls) |
TEDS cohorts: | School cohorts 1 and 2 (twins born Jan-94 to Aug-95) |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Parents and twins were interviewed by telephone
(administered by TEDS callers). The twin interview data were coded and entered in TEDS. Parent interview data were recorded using the "DAWBA" instrument, which is not documented in TEDS. In a small number of cases, questionnaire data were collected from twins' teachers, if not already collected during the preceding TEDS 9 Year study. This helped to categorise participating families as cases or controls. These additional teacher data have not been retained in TEDS. |
Data available in TEDS: | Yes: coded twin interview data only,
in a dataset of roughly 1200 twin pairs. The DAWBA parent interview data are not available. Essi Viding should be included as co-author in any collaborative project. |
Documents: |
Script
showing the questions asked in twin interviews. Scoring rules for the Theory of Mind, Moral and Conventional, and Emotion Attribution measures in the twin interviews. Annotated script showing dataset variable coding for the twin interview data. |
Eating Questionnaire
Study names: | Eating Questionnaire |
Principal investigator: | Jane Wardle |
Location: | Administered by TEDS, data sent to UCL. |
Focus of study: | Eating/diet/weight |
Year(s) of study: | 2005 |
Number of TEDS families: | 12212 |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: |
The questionnaire was sent to the entire sample of contactable TEDS families. |
Data collection: | Parent questionnaire sent by mail. The data from returned questionnaires were entered by optical scanning. |
Data available in TEDS: | Yes. The double entered dataset
contains data from nearly 6000 parents. Any collaborative project should involve the research team at UCL. |
Documents: |
Questionnaire,
completed by parents. Annotated questionnaire showing dataset variable coding. |
Eating Study
Study names: | Eating Study, Eating-1 (phase 1), Eating-2 (phase 2) |
Principal investigator: | Jane Wardle |
Location: | University College, London |
Focus of study: | Eating/diet/weight |
Year(s) of study: | 1998 to 2005 (Phase 1: 1998-99; Phase 2: 2005) |
Number of TEDS families: | 861 in phase 1 (531 controls, 330
cases),
204 in phase 2 (109 controls, 95 cases) |
TEDS cohorts: | 1994, 1995 |
Families excluded from sample: |
Exclusion criteria not recorded for phase 1. Phase 2 families were a subset of the phase 1 families, with these exclusions:
|
Selection criteria: |
|
Data collection: | Home visits for face-to-face testing. |
Data available in TEDS: | No |
Documents: | - |
ECHO
Study names: | ECHO (Emotions, Cognitions, Heredity and Outcome) |
Principal investigator: | Thalia Eley |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | Anxiety |
Year(s) of study: | 2002 to 2005 (Phase 1: 2002-03; Phase 2: 2004-05) |
Number of TEDS families: | 374 (307 cases, 67 controls) |
TEDS cohorts: | 1994, 1995 |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Families visited the SGDP Centre for
face-to-face testing. DNA collected on visit. |
Data available in TEDS: | No |
Documents: | - |
EEG
Study names: | EEG (electroencephalogram study), NEAAT (Neurophysiology of Attention and Activity in Twins), Centre Study |
Principal investigator: | Grainne McLoughlin |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | ADHD |
Year(s) of study: | 2009 to 2010 |
Number of TEDS families: | 301 (230 cases, 71 controls) |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Families visited the SGDP Centre for
face-to-face testing, including EEG measurements and questionnaires.
DNA (blood and saliva) collected on visit. |
Data available in TEDS: | No |
Documents: | - |
Engagement
Study names: | Engagement |
Principal investigator: | Robert Plomin |
Location: | TEDS |
Focus of study: | Engagement of twins in TEDS activities, use of social media |
Year(s) of study: | 2014 |
Number of TEDS families: | 393 (250 "engaged", 143 "disengaged") |
TEDS cohorts: | School cohort 1 |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Web questionnaires. The "Engaged" twin pairs were presented with a longer "SE" questionnaire. The "Disengaged" twin pairs were presented with a shorter "SD" questionnaire, in one of two versions: one version designed for the "disengaged" twin, and the other version designed for the "engaged" twin. The two versions of the SD questionnaire had essentially the same questions but with modified wording: disengaged twins were asked about themselves, while engaged twins were asked about their disengaged cotwins. |
Data available in TEDS: | Yes. The SE questionnaire dataset has doubled entered data for roughly 60 twin pairs and 60 unpaired twins. The SD questionnaire dataset has unpaired data for roughly 60 twins (40 engaged and 20 disengaged). |
Documents: |
Engagement questionnaires, document including all three versions. Annotated questionnaire showing variables in the SE and SD datasets. Engagement information sheet. |
E-Risk
Study names: | E-Risk (Environment-Risk), TEDS-Environment Includes sub-sample studies: Germ-Fighter Study (150 families, in 2009), Peers Study (87 families, in 2007) |
Principal investigator: | Terrie Moffitt and Avshalom Caspi |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | Environmental risk |
Year(s) of study: | 1998 onwards |
Number of TEDS families: | 1116 |
TEDS cohorts: | 1994, 1995 |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Home visits at several ages for
face-to-face testing. DNA collected during visits. Teacher questionnaires at several ages; school visits for testing involving teachers at age 12. |
Data available in TEDS: | No |
Documents: | - |
Fashion, Food and Music Preferences
Study names: | Fashion, Food and Music Preferences (FFMP), Fashion web study |
Principal investigator: | Andrea Smith (UCL) compiled the
measures. The study was administered in TEDS with Robert Plomin as PI. |
Location: | Administered at the SGDP Centre, IOP (KCL), in collaboration with Andrea Smith (UCL) |
Focus of study: | Twin preferences for types of fashion, food and music |
Year(s) of study: | 2015 |
Number of TEDS families: | 3166 |
TEDS cohorts: | School cohort 3 |
Families excluded from sample: |
|
Selection criteria: | All twins in this cohort were invited. |
Data collection: | Web questionnaire, administered by TEDS and treated as a main TEDS study. |
Data available in TEDS: | Yes. This sub-study has been treated as a major TEDS study, forming part of the 18 year dataset. There are data for roughly 1300 twin pairs plus 400 unpaired twins. Andrea Smith (UCL) should be included as a co-author in any collaborative project. |
Documents: | See the 18 year study page for full documentation. |
FLARe
Study names: | FLARe (Fear Learning and Anxiety Response) |
Principal investigator: | Thalia Eley |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | Anxiety responses |
Year(s) of study: | 2019 |
Number of TEDS families: | 2957 |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: | Twin pairs were selected in which both twins had completed phases 1 and 2 of TEDS21 prior to October 2018 (the TEDS21 study was still in its closing stages when FLARe started). |
Data collection: | Mobile phone app, using headphones, and involving responses to fear-conditioning stimuli. |
Data available in TEDS: | No |
Documents: | - |
IDEAS
Study names: | IDEAS (Individual Differences in EEG in Young Adults Study) |
Principal investigator: | Grainne McLoughlin |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | ADHD and its overlap with ASD |
Year(s) of study: | 2015 to 2019 |
Number of TEDS families: | 1154 |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: | Families who previously participated in the NEATT/EEG study (2009-2010) and/or in the SRS study (2008-2010) supplemented by new families in which one or both twins had high scores in measures of ADHD or ASD traits. |
Data collection: | EEG measurements using mobile equipment, administered in visits to the twins' homes or in visit of twins to the SGDP Centre. Also, in-person interviews and questionnaires (for twins, not parents). |
Data available in TEDS: | No |
Documents: | - |
In-Home Study
Study names: | In-Home Study, 4 Year In-Home Testing |
Principal investigator: | Robert Plomin |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | Language and cognitive testing |
Year(s) of study: | 1998 to 2001 |
Number of TEDS families: | 992 Note that this was effectively treated as a main TEDS study, even though it involved only a subsample of the families. |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: | Selected families had (recently) completed the 4 Year booklets. Selection was then based on the language and cognitive data from these booklets. Families were selected as 'lows' if either or both twins met specific criteria for low-scoring in either the Parca cognitive tests or the MCDI language measures. In addition to the 'lows', some 'control' families were selected in which neither twin met the 'low' criteria. Further explanation of selection can be found on the in-home study page. |
Data collection: | A battery of cognitive and language tests, administered by TEDS researchers during visits to family homes. In addition, there was a parent questionnaire and researcher-based assessments of the home environment and aspects of twin behaviour. |
Data available in TEDS: | Yes. This sub-study has been treated as a major TEDS study, forming the in-home dataset. There are data for roughly 800 twin pairs. |
Documents: | See the in-home study page for full documentation. |
Language telephone tests
Study names: | Language tests (part of the TEDS age 14 battery) |
Principal investigator: | Emma Hayiou-Thomas |
Location: | York |
Focus of study: | Language/verbal abilities |
Year(s) of study: | 2008 |
Number of TEDS families: | 649 |
TEDS cohorts: | School cohort 1 |
Families excluded from sample: |
|
Selection criteria: | Families in cohort 1 were selected if both twins had previously completed the language web tests at age 12. |
Data collection: | Telephone tests administered by phone to twins and recorded onto audio CDs. The tests were administered in TEDS, then the CDs were transported to York University for transcription, coding and analysis. |
Data available in TEDS: | No |
Documents: | The actual tests are not documented here, but some details about the administration of the study can be found on the 14 year study page. |
LINCS
Study names: | LINCS (Linking Cognitive Styles) |
Principal investigator: | Francesca Happe |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | Cognitive abilities |
Year(s) of study: | 2005 |
Number of TEDS families: | 1393 (broadly unselected, no cases or controls) |
TEDS cohorts: | 1996 |
Families excluded from sample: |
|
Selection criteria: | (none) |
Data collection: | Twin computer activities at home (activities run from a CD sent by post; data retrieved via Internet). A minority of families were subsequently contacted by phone for parent and twin telephone interviews. |
Data available in TEDS: | No |
Documents: | - |
MRI Conduct
Study names: | MRI Conduct, Emotions and Behaviour Neuroimaging Study, Psychopathy MRI |
Principal investigator: | Essi Viding |
Location: | SGDP Centre, IOP (KCL) and the MRI Unit, Maudsley Hospital |
Focus of study: | Psychopathy traits |
Year(s) of study: | 2005 to 2006 |
Number of TEDS families: | 195 (100 CU+CP, 38 CP-only, 57 controls) |
TEDS cohorts: | School cohorts 1 and 2 (twins born between January 1994 and August 1995) |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Families visited the MRI Unit (Centre for Neuroimaging Sciences, Maudsley Hospital) for twin MRI scans with test activities. |
Data available in TEDS: | No |
Documents: | - |
MRI Maths
Study names: | MRI Maths, Quantitative Neuroimaging of Mathematics Ability, Maths Neuroimaging Study |
Principal investigator: | Yulia Kovas |
Location: | SGDP Centre, IOP (KCL) and the MRI Unit, Maudsley Hospital |
Focus of study: | Mathematics abilities |
Year(s) of study: | 2005 |
Number of TEDS families: | 68 (39 lows, 29 highs) |
TEDS cohorts: | 1994 and 1995 |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Families visited the MRI Unit (Centre for Neuroimaging Sciences, Maudsley Hospital) for twin MRI scans with test activities. |
Data available in TEDS: | No |
Documents: | - |
Music Quotient Pilot
Study names: | Music Quotient pilot study |
Principal investigator: | Marcel Zentner (York University) |
Location: | Administered by TEDS as a pilot study with retest. The activities were located on a web server administered by York University. |
Focus of study: | Musical abilities |
Year(s) of study: | 2013 |
Number of TEDS families: | 100 |
TEDS cohorts: | School cohort 1 (twins born between January and August 1994 |
Families excluded from sample: |
|
Selection criteria: | 100 twin pairs were randomly selected from cohort 1. |
Data collection: | Twins were invited individually (not as pairs) by post.
The invitation included login details for participation
in the web study. A single postal reminder was sent,
two weeks after the initial invitation.
Participating twins were rewarded with Flexecode vouchers.
45 early participants were re-invited for a re-test,
with the same activities, two weeks after completing
the initial test; these twins were contacted using email
addresses collected in the initial testing; up to three
email reminders were sent, and participants were again
rewarded with vouchers. Participating twins were asked for feedback at the end of the web activities. Non-participating twins were contacted for feedback about why they chose not to take part. |
Data available in TEDS: | No. |
Documents: | - |
Myopia
Study names: | Myopia Study |
Principal investigator: | Katie Williams, Chris Hammond |
Location: | Administered partly by TEDS and partly by Katie Williams at St Thomas' Hospital |
Focus of study: | Cognitive, behavioural, environmental and genetic associations with myopia |
Year(s) of study: | 2012 |
Number of TEDS families: | 2625 |
TEDS cohorts: | School cohorts 2, 3 and 4 (twins born between September 1994 and December 1996) |
Families excluded from sample: |
|
Selection criteria: |
Twin pairs were selected if they met either or both of the following
criteria:
|
Data collection: | TEDS sent consent forms and questionnaires to the families; these
were returned to TEDS, then forwarded to Katie Williams at St Thomas'
Hospital. For consenting families, Katie Williams used the questionnaire information to contact opticians, in order to collect eye test prescription results. |
Data available in TEDS: | No, except for the screening questions about eyesight in the 16 year web dataset. |
Documents: | Combined letter, consent and initial questionnaire and the information sheet sent in the invitation pack. |
Nuffield
Study names: | Nuffield Study |
Principal investigator: | Kathryn Asbury |
Location: | Administered partly by TEDS and partly by Kathryn Asbury at York University |
Focus of study: | Discordance in MZ twin pairs |
Year(s) of study: | 2012 to 2014 |
Number of TEDS families: | 2316 |
TEDS cohorts: | School cohorts 2 and 3 (twins born between September 1994 and August 1996) |
Families excluded from sample: |
|
Selection criteria: |
Phase 1 (parent
and twin questionnaires):
|
Data collection: | In phase 1, 2162 families in cohorts 2 and 3 were sent parent and
twin questionnaires which were returned to the TEDS office; the data
from the questionnaires (consisting entirely of text responses) were
entered and forwarded to Kathryn at York for coding and analysis. These data have not been
retained in TEDS. In phase 2, 120 families selected from the phase 1 questionnaire data were contacted by telephone to arrange in-person interviews. The interviews were recorded and later transcribed and coded at York. These data have not been retained in TEDS. Responses from phases 1 and 2 were used to create a structured questionnaire for phase 3. In the phase 3 pilot study, 300 families from cohort 3 were sent twin questionnaires which were returned to the TEDS office. The data were coded and entered in TEDS then transferred to Kathryn at York. These data have not been retained in TEDS. The phase 3 main study used a significantly altered and shortened version of the pilot questionnaire. This questionnaire was sent to a larger sample of 2152 families, again from cohort 3, including those families who had participated in the phase 3 pilot. The data were entered by optical scanning. The dataset was transferred to Kathryn at York and a copy of the dataset was retained in TEDS. |
Data available in TEDS: | Yes, for the phase 3 main study only.
The questionnaire data form a double-entered twin dataset for roughly 900 twin pairs. Data have not been retained in TEDS for phases 1 and 2, nor for the phase 3 pilot study. Kathryn Asbury should be included as co-author in any collaborative project. |
Documents: | Phase 1
parent questionnaire,
twin
questionnaire
and
information sheet. Phase 3 pilot twin questionnaire, main study twin questionnaire, coding in the main questionnaire. |
OSCCI
Study names: | OSCCI (Oxford Study of Children's Communication
Impairments) OSCCI-2 for phase 2 of study |
Principal investigator: | Dorothy Bishop |
Location: | University of Oxford |
Focus of study: | Language development |
Year(s) of study: | Phase 1: 2000 to 2003; Phase 2: 2003 to 2006 |
Number of TEDS families: | Phase 1: 747 (285 cases, 462
controls) Phase 2: 305 (all cases) |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Home visits for face-to-face testing. School visits for testing involving teachers. |
Data available in TEDS: | No |
Documents: | - |
PHAD
Study names: | PHAD (Pathways to Hyperactivity and Attention
Deficit), Hyperactivity Study |
Principal investigator: | Eric Taylor |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | Hyperactivity |
Year(s) of study: | 2003 to 2006 |
Number of TEDS families: | 817 (all cases) |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Screening questionnaire (sent by post) followed by home visit involving computer activities. DNA collected on home visit. Visit followed up by MRI scan at the IOP in some cases. |
Data available in TEDS: | No |
Documents: | - |
Perception
Study names: | Perception Study, Face Perception, Faces web study |
Principal investigator: | Nic Shakeshaft, under the supervision of Robert Plomin |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | Visual perception and memory |
Year(s) of study: | 2013 |
Number of TEDS families: | 2382 |
TEDS cohorts: | School cohort 1 (plus 100 families from cohort 2 in the pilot phase) |
Families excluded from sample: |
|
Selection criteria: |
All twins in cohort 1 were invited, along with 100 randomly selected
twin pairs from cohort 2. The study comprised a pilot phase with 100 twin pairs from each of cohorts 1 and 2, followed by a main study phase with the remainder of cohort 1. The measure was not changed after the pilot phase, and the dataset contains data from both the pilot and the main phase. |
Data collection: | Web battery (tests and questionnaire), administered by TEDS and treated as a main TEDS study. |
Data available in TEDS: | Yes. This sub-study has been treated as a major TEDS study, forming part of the 18 year dataset. There are data for just under 1000 twin pairs plus 300 unpaired twins. Nic Shakeshaft should be included as a co-author in any collaborative project. |
Documents: | See the 18 year study page for full documentation. |
RNA
Study names: | RNA Study, Gene Expression Study |
Principal investigator: | Emma Meaburn |
Location: | Administered by TEDS |
Focus of study: | Gene expression |
Year(s) of study: | 2007 |
Number of TEDS families: | 5 |
TEDS cohorts: | 1994 |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Families visited the SGDP Centre for face-to-face testing and blood sampling. Visits were repeated (with identical activities and blood sampling) later the same year for reliability testing. |
Data available in TEDS: | No |
Documents: | - |
SAIL
Study names: | SAIL |
Principal investigator: | Jonna Kuntsi |
Focus of study: | ADHD |
Location: | SGDP Centre, IOP (KCL) |
Year(s) of study: | 2003 to 2005 |
Number of TEDS families: | 1444 (broadly unselected; no cases or controls) |
TEDS cohorts: | School cohorts 3 and 4 (twins born between September 1995 and December 1996) |
Families excluded from sample: |
|
Selection criteria: |
|
Data collection: | Families visited the SGDP Centre for
face-to-face testing. DNA collected on visit. Parent questionnaire administered during visit. Teacher questionnaires administered by post. |
Data available in TEDS: | No |
Documents: | - |
SLA
Study names: | SLA (Second Language Acquisition) |
Principal investigator: | Philip Dale |
Location: | Administered by TEDS |
Focus of study: | Learning a second language (German) |
Year(s) of study: | 2012 |
Number of TEDS families: | 146 |
TEDS cohorts: | School cohort 4 (twins born between September and December 1996) |
Families excluded from sample: |
|
Selection criteria: |
The initial sample comprised families in which the parent had completed and returned the language questionnaire (SLQ) at age 14 |
Data collection: | Twins were asked to spend a minimum of 5 hours learning German using the
'Rosetta Stone' software package. Data were collected (on the Rosetta Stone
server) by means of tests incorporated within the software package.
The data comprised scores for tests at the first four levels of learning in the software.
The scores at each level were for topics such as vocabulary, grammar, writing, listening and speaking. Data were collected from 26 twin pairs and 1 unpaired twin. The data from this pilot study were not fully documented and they have not been retained in TEDS. |
Data available in TEDS: | No |
Documents: | Information sheet |
SLI
Study names: | SLI (Specific Language Impairment) |
Principal investigator: | Philip Dale |
Location: | Administered by TEDS |
Focus of study: | Language impairment |
Year(s) of study: | 2011 to 2012 |
Number of TEDS families: | 670 |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: |
The initial sample comprised families who were visited in the TEDS 4 year In Home study (minus exclusions as above) |
Data collection: | Short telephone test administered to twins. |
Data available in TEDS: | Yes. The telephone test responses were scored and entered in TEDS, and are available in a double entered dataset for just over 400 twin pairs. Philip Dale should be included as co-author in any collaborative project. |
Documents: |
Twin
interview script
used by callers. Twin score sheet used by callers to record responses, annotated to show item response and score variables. Dataset variables including derivation of scores. |
SLQ
Study names: | SLQ (Second Language Questionnaire) |
Principal investigator: | Philip Dale |
Location: | Administered by TEDS |
Focus of study: | Second language acquisition |
Year(s) of study: | 2008 to 2011 |
Number of TEDS families: | 10,936 |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: |
The initial intended sample was school cohort 1. However, over the following three years it was extended to cohorts 2, 3 and 4, hence included the entire TEDS sample. This was at least partly because the same questionnaire was used to collect KS3 assessment data. |
Data collection: | Parent questionnaire. |
Data available in TEDS: | Yes. This now forms part of the main TEDS 14 year dataset. There are data for roughly 3500 twin pairs. Philip Dale should be included as co-author in any collaborative project involving the second-language measures. |
Documents: | See pages relating to the 14 year study. |
Spatial
Study names: | Spatial web studies. Included three consecutive web studies: Bricks, Kings Challenge and Navigation. |
Principal investigator: | Nic Shakeshaft, under the supervision of Robert Plomin |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | Spatial cognitive abilities |
Year(s) of study: | 2015 |
Number of TEDS families: | 2184 (Bricks), 3042 (Kings Challenge), 5509 (Navigation) |
TEDS cohorts: | School cohorts 1 and 2 |
Families excluded from sample: |
|
Selection criteria: |
Bricks: only families in which both twins had completed the entire
battery of 16 year web tests. Kings Challenge: only families in which both twins had completed at least part of the 16 year web battery. Navigation: all twins in cohorts 1 and 2 were invited. Hence the sample was progressively widened from Bricks to Kings Challenge to Navigation, but all were within cohorts 1 and 2. |
Data collection: | Batteries of web tests, administered as three independent studies by TEDS (and treated as a main TEDS study). |
Data available in TEDS: | Yes. This sub-study has been treated as a major TEDS study, forming part of the 18 year dataset. There are data for roughly 1300 twin pairs (Bricks), 1100 pairs (Kings Challenge) and just under 1000 pairs (Navigation), plus varying numbers of unpaired twins. Nic Shakeshaft should be included as a co-author in any collaborative project. |
Documents: | See the 18 year study page for full documentation. |
SRS
Study names: | SRS (Social Relationships Study), SRS-2 (for phase 2), SRS-3 (for phase 3) |
Principal investigator: | Francesca Happe |
Location: | SGDP Centre, IOP (KCL) |
Focus of study: | Autism |
Year(s) of study: | Phase 1: 2008 to 2010 Phase 2 (SRS-2): 2013 to 2014 Phase 3 (SRS-3): 2017 to 2019 |
Number of TEDS families: | Phase 1: 1094 (222 cases, 171
unmatched controls, 701 matched controls)
Phase 2: 219 (cases) Phase 3: 531 (cases and high-trait twins) |
TEDS cohorts: | All |
Families excluded from sample: |
All families:
Phase 1 control families (matched and unmatched):
|
Selection criteria: |
|
Data collection: | Home visits for face-to-face twin testing
and parent questionnaires (in phases 2 and 3, families had the option of
visiting the SGDP Centre instead). Phase 1 cases followed up with a second home visit. DNA collected during visit. Teacher questionnaires administered by mail. Siblings assessed initially by postal questionnaire, then followed up at visit if suspected of autism/ASD. |
Data available in TEDS: | No |
Documents: | - |
Stories
Study names: | Stories task from twin 9 year booklet |
Principal investigator: | Bonny Oliver |
Location: | Administered by TEDS |
Focus of study: | Writing abilities |
Year(s) of study: | 2002 to 2004 |
Number of TEDS families: | 4076 |
TEDS cohorts: | School cohorts 1 and 2 |
Families excluded from sample: |
|
Selection criteria: |
Twin booklets were sent to all families who had given initial consent to participating in the 9 year booklet study. |
Data collection: | A measure within the twin booklet. |
Data available in TEDS: | Yes. The hand-written stories were scanned and have been saved in pseudonymous pdf files, one per twin. Each such file is identified by its file name, which is the pseudonymous identifier for the twin. The scanned image within each file is of the hand-written story, with any other potentially identifying information removed. These scanned files exist for roughly 2800 twin pairs. Bonny Oliver should be included as co-author in any collaborative project. |
Documents: | See pages relating to the 9 year study. |
Stuttering
Study names: | Stuttering, Speech Fluency Study |
Principal investigator: | Katharina Dworzynski |
Location: | Administered by TEDS |
Focus of study: | Stuttering |
Year(s) of study: | 2006 |
Number of TEDS families: | 321 |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: | Twins reported to have stuttering problems at 3, 4 or 7 |
Data collection: | Parents interviewed by telephone |
Data available in TEDS: | No. |
Documents: |
Information sheet sent with the initial consent mailing. Rating scale used by callers to rate and code responses. (Unfortunately, no copy of the script or interview questions has been retained.) |
TAMBA
Study names: | TAMBA, What is it like to be a twin? |
Principal investigator: | Robert Plomin |
Location: | Administered by TEDS |
Focus of study: | Feelings about being a twin |
Year(s) of study: | 2010 |
Number of TEDS families: | 122 |
TEDS cohorts: | all |
Families excluded from sample: | Uncontactable families (withdrawn, address problems) |
Selection criteria: | A subset of twin pairs participating in the Attachment sub-study, described elsewhere on this page. |
Data collection: | This small study was carried out at the
request of the Twins and Multiple Births Association (TAMBA).
Questions were supplied by TAMBA and edited by TEDS researchers
to create a brief paper questionnaire. Data from returned questionnaires
were manually entered in the TEDS office. The data collection was not documented in detail. Apparently, the questionnaire was passed to staff involved in the Attachment sub-study (described elsewhere on this page), in the hope that participating Attachment families would also complete the TAMBA questionnaire. |
Data available in TEDS: | Yes. The questionnaire data have been used to make a double-entered twin dataset for roughly 120 twin pairs. |
Documents: | TAMBA questionnaire annotated to show dataset variables and coding |
Study names: | Twitter, Social Networks Study |
Principal investigator: | Claire Haworth, Oliver Davis |
Location: | Administered by TEDS |
Focus of study: | Wellbeing measurements from Twitter feeds |
Year(s) of study: | 2013 |
Number of TEDS families: | 1553 |
TEDS cohorts: | all |
Families excluded from sample: | - |
Selection criteria: |
|
Data collection: | Twins who had supplied valid Twitter
usernames in the LEAP-2 booklet at age 16 (2012) were supplemented by a
further request sent with the TEDS newsletter in 2013. These twins, and
their co-twins, were asked to complete a Social Media questionnaire in
2013. This questionnaire was collected by TEDS, and entered by means of
optical scanning. For twins found to have valid usernames, Tweets (Twitter messages) were collected and analysed programmatically without the need for further contact with the families. This latter part of the study was administered by Oliver Davis at UCL. |
Data available in TEDS: | Yes (questionnaire only, not Twitter
data). These questionnaire data are available in a double entered twin dataset, for roughly 1200 twin pairs. The data harvested electronically from Twitter are not available in TEDS. |
Documents: |
Twin
questionnaire
and the accompanying
invitation letter and information sheet. Annotated version of the twin questionnaire, showing dataset coding. References for questionnaire measures. |
Weight Discordance
Study names: | Weight Discordance Study, Eating-3 |
Principal investigator: | Jane Wardle |
Location: | University College, London |
Focus of study: | Eating/diet/weight |
Year(s) of study: | 2006 |
Number of TEDS families: | 24 |
TEDS cohorts: | All |
Families excluded from sample: |
Families were apparently hand-picked by Joanna Ashcroft, then vetted by TEDS on a case-by-case basis. |
Selection criteria: |
Selection criteria are unclear, but they are based on the 2005 Eating Questionnaire. The selection is unrelated to the earlier Eating Study. |
Data collection: | Telephone interviews with parents. |
Data available in TEDS: | No |
Documents: | - |
Wellbeing
Study names: | Wellbeing |
Principal investigator: | Claire Haworth |
Location: | Administered by TEDS |
Focus of study: | Twin wellbeing |
Year(s) of study: | 2011 to 2013 |
Number of TEDS families: | 1552 |
TEDS cohorts: | School cohorts 3 and 4 (twins born between September 1995 and December 1996) |
Families excluded from sample: |
|
Selection criteria: |
113 families from cohorts 3 and 4 were selected for the pilot study
in 2011; The initial selection for the pilot study included 20 families in each of 10 groups (5 quintile groups for SES variable 'ases', each divided into two male and female groups). The families in each group were selected at random from larger available numbers meeting the criteria above. In the main study (waves 1 and 2), an initial pool of families was selected according to the criteria above. Equal numbers of male and female twin pairs were then selected randomly from this pool. In wave 2, as a further constraint, equal numbers of MZ and DZ twin pairs were selected. |
Data collection: | A series of time-sensitive questionnaires,
and requests to carry out practical wellbeing activities, was
administered via the web over a period of 9 weeks. The activities were refined
between the pilot study and the main study. In the main study, for twins, a questionnaire was administered in week 0, at the time of initial login, followed by further activities (questionnaires and other tasks) at weekly intervals for weeks 1, 2, 3, 4, 5 and 6, then a final questionnaire in week 9. For parents, the questionnaires were much shorter (with no practical activities) and only administered in weeks 0, 3, 6 and 9. Further details can be found in the documents linked below. The data were collected via a web application on the TEDS web server. In each family, the parent was required to log in and consent before each twin could proceed; and twins were then required to give their own consent. The text data entered by twins in certain activities were subsequently programmatically coded, but the text data and the resulting codes have not been retained; the coding process is not documented in TEDS. |
Data available in TEDS: | Yes: for the main study only (not
for the pilot study). The dataset contains data for roughly 450 families (parent and both twins). The variables are double entered. Claire Haworth should be included as co-author in any collaborative project. |
Documents: |
Weekly order of activities. Twin activities and parent activities. Timing and other rules. |
Young Sibs
Study names: | Young Sibling Study |
Principal investigator: | Robert Plomin |
Location: | Administered by TEDS |
Focus of study: | Comparison of non-twin siblings with twins |
Year(s) of study: | 1997 to 2004 |
Number of TEDS families: | 1350 |
TEDS cohorts: | All |
Families excluded from sample: |
|
Selection criteria: |
In general, all families of known young siblings of the appropriate age were contacted and asked to participate at each age (2, 3, 4 and 7). |
Data collection: | Questionnaires and other instruments were equivalent to those used for the twin data collections at ages 2, 3, 4 and 7. At 2, 3 and 4, the child booklet was the same as for the respective twin studies (but the parent booklet was not used). At age 7, telephone interviews by TEDS staff were used to collect twin test data and child-specific measures from the parent questionnaire, as for the twins at age 7. Where parents gave consent, siblings' teachers were also contacted by post for the 7 year teacher questionnaire. All data were coded and entered within TEDS, as for the twin data. |
Data available in TEDS: | Yes. The sibling datasets at ages 2, 3, 4 and 7 have been retained in a single dataset (not double entered because they are not twins). These datasets include essentially the same variables as in the equivalent twin datasets at these ages. The sibling datasets can be merged with the twin datasets by matching on the family identifier id_fam. There are data for roughly 500 siblings at age 2, 600 siblings at age 3 and 550 siblings at age 4; there are 275 siblings with data at all three ages. There are parent and child data for roughly 240 siblings at age 7, with additional teacher data for 175 of them. |
Documents: |
The materials used for the young sibling study (booklets,
questionnaires, telephone tests) were the same as those used in the
corresponding twins studies: see the
2 Year, 3 Year,
4 Year and 7 Year study
pages for details. Outline of measures and variables included in the young sibling datasets. |